Crossville Chronicle, Crossville, TN

July 23, 2013

Support group changes name


— The Parkinson's Support Group is changing the name of its support group to include the many different types of Parkinson's disease (PD). People are now being diagnosed with names of movement disorders (not just the shaking or tremor that marks PD, but also rigidity, stiffness, freezing, slowness, differences in B/P and body functions, etc. Now they are calling these different types of PD, Atypical Parkinson's Disease.

Whether you or someone you know is diagnosed with Essential Tremors (ET), Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD), Multiple System Atrophy (MSA) or any other PD brain disorders, you are welcome to come to their support group. What they have found is that people suffering with chronic disorders do better when they are able to be with other people who are dealing with the same situations and to share what they are experiencing and ways that have helped them deal with the every day problems they face.

Caregivers are receiving support from one another, and they try to have speakers who are knowledgeable in these problems and situation. Some of these chronic illnesses are genetic, and some are environmental and the medical communities are still doing research on all of them. The group continues to try to get all new research information on the conditions and the medication to the people in the group.

Their next meeting will be Tuesday, Aug. 6, at 2:30 p.m. in the Christ Lutheran Church Fellowship Hall at 481 Snead Dr., Fairfield Glade. Light refreshments and their borrowing library will be available.

On Aug. 6 the speaker will be Dr. Giorgi Sirbiladze, neurologist from Cumberland Medical Center. He will discuss PD and the different types of Atypical PD diseases with a question and answer time at the end. All those in the community who are interested are invited to come to this meeting.

For the Sept. 3 meeting, they will be hosting one of the Vanderbilt Movement Disorder Neurologist, with more information on medications and research being done at Vanderbilt on PD. This will be a luncheon, hosted by TEVA Pharmaceutical Co. (Azilect), starting at 2 p.m. and will be by reservation only. The luncheon will be catered by Big Boy's Barbeque. There will be a sign-up sheet at the August meeting.

On Oct. 12, they will be renting the Fairfield Glade van and going to the Blazing Toward a Cure Conference at Vanderbilt. This trip will be by reservation only also, and a sign-up sheet will be available at the August meeting. Only 25 seats will be available. This will replace the first Tuesday of October meeting.

Come join them in August. If you have questions or need directions, call Gary and Sally Dixner at 484-0193.